Back to 0

Audrey update- the countdown is back to Zero. :( sad day. I think I knew this day was going to come... Just not totally prepared for it. She had a 2.5/3 min seizure sunday (12/8) afternoon. As always, glad it was on a day when Jordan was home. And the dr's in ohio told us that this would probably happen. The only thing to watch is if she starts back in her pattern... so we're on high alert for the next 2-3 weeks.  To be honest it's been nice to not have these happen at all. I lost count there so I tallied it up and she made it 121 days- 4 months. That's the longest she's even been without a seizure and second to before she had her first one at 4.5 months old. 

It's interesting to me how after such a long time you can remember what to do in that situation- at least Jordan can. (he's always been the one on top of recording and such).

Since then she has been back to her old self and still is progressing an adding words to her vocabulary. 

Genetic testing will be a slow process but I'm hopeful we'll get an answer by July. We're trying to qualify for a study in Spain , but will take a few months to qualify and then to get results. W/o the study we are looking at a $8900 test. Ouch! So here's hoping we get accepted. Keep you posted! 

And we hope everyone has a Merry Christmas!!!! 

Ward party

Funny face reading time. Audrey was trying to figure it out :)