poppy birds

Tuesday, August 20, 2013

Busy. busy.

So we have been crazy busy trying to get house stuff put together and house stuff pack up. I'm really looking forward to not moving again for at least 10 years or more. it's not fun. still don't have our house up for sale. and still working on the new house. Who knew that there were so many steps to building! wow.
This last week my mom and I went to pick out granite for the counter tops. WOW! it was a girl's dream to have that many choices. Literally hundreds. and several different cuts within the same color! it was SO COOL!!! I did manage to pick one out.. we'll see if my choice is in line with the budget... ;) haha probably not.
just love these eyes
Audrey update-
So I did finally hear back from the doctor. Her EEG showed seizure activity starting all over her brain... which isn't what I was hoping to hear... basically because we don't have the option of just going in and cutting out the problem part and have a shot at getting rid of the seizures in one swoop. So we will be on medication for a long time, hopefully finding the right combo/ones to help decrease her activity and best case scenario, stopping them altogether. So we made medication changes which I think have helped a little bit, (we are currently on day 13) but I'm still holding out for the next couple of days. Plus she's sick again.. so that cuts down our odds of pushing past day 14. :(
He did mention a specific genetic disorder he was leaning towards... but for the sake of not worrying and trying not to jump to conclusions.. I'm not saying what it is. :) sorry. There is a specific gene test that says if you're positive or not... so we are going to see if the DR in Ohio feels the same, and take that test before we tell everyone... (it's not a good one to have.) so until then.... and more info from Ohio DR...... surgery is out and we are still waiting for an answer as to what she has.
Speaking of going to Ohio.. no date has been set yet... we're still waiting on getting medical records. FYI for anyone who is wanting to get theirs... just go directly to the records department and wait until you have everything you need. :) otherwise it will be 14-?? days for them to print and mail them to you. just some friendly advice.
On some more happy news...
Audrey has been progressing more! YAY!
she can now say: grandma, grandpa, book, and make car noises.
 bend over and pick things up and then stand again.
starting to walk along the couch, and LOVES to hold onto you're fingers and walk.
Does this little bounce/hop on her bum. too funny. she almost bounces too much and falls forward onto her face.
and she LOVES the water. we went swimming last week and she splashed so much that we thought she was drowning... all the time having a smile on her face.
LOVES to read books. she will let you read every book 5 times and then more.
She will now follow simple commands- come here , go get a book, and no- but not very good.. she's stubborn.
She also loves to tease people. a little boy at church was handing her the ball and would then pull it away at the last second. She picked up on that, and when she finally received the ball, proceeded to do it back to the little boy. ha ha it was too funny!
Superman cape!
Garrett is also growing up too fast...
I told him in the car the other day that Audrey might have a seizure and that he would have to help grandma out if she did... This was the conversation....
G-"Did you bring the diaper bag?"   Me- "yes"
G- " Did you get a burp rag?"   Me- "yes"
G- "Did you pack a sucker? (bulb syringe)  Me- "Yes"
G- " Did you pack those one things that you do? (emergency meds)  Me-"Yes"
G- "Those ones that you stick up her bum?"  Me trying not to laugh out loud- " Yes garrett"  hahahaha  it was too funny! But what a responsible 3 year old. I still can't believe he knows the routine and of course feels like he could take care of Audrey if she really did have a seizure. I am truly amazed. love my little guy!



ahhh sibling rivalry... they do try to share.

an evening bike ride.

g man learned that if you stick something in the canal... you can follow it and fish it out.
just a childhood staple, right?

Monday, August 5, 2013

Moving forward and standing still

Audrey update-
I know you all are wondering what the DR has said.. We are still wondering ourselves. No one has returned our phone calls and I'm not expecting much in the near future from this particular DR. 
We have been able to see the report online... And all we could decipher was that her seizures are lasting longer in her brain than what we see physically.  So not super good news but we did want to confirm that with the DR. Oh well...

And so the wait continues.... However we have officially decided and are working on heading out to Ohio to get a second opinion and, for a lack of a nicer way of saying it, better care/plan. So I'm on the phone a lot and trying to get records and such to the right people. We are hopeful that this is the right direction and step we need to take for Audrey and I'm excited to figure out some answers!
 It has been 6 months since Audrey had her first seizure and I'm amazed not only with how things have changed an progressed, but how we have also changed and progressed. It's been rough but good lessons learned. It never turns out how you think.... 

We are still in the teething stage.audrey has her two bottom teeth finally and loves French fries and Popsicles. She knows what a horse, dog, cow and owl say. Her favorite is the horse, with the accompanied horse ride (usually from dad). She loves to sit in the car shopping carts. She's making car noises while turning the wheel as fast as she can. We are in trouble.... Her favorite word right now is "ah ooooh" as she drops things over the side of her high chair, crib, carseat, etc. it really is her favorite game too- when we play along.
Garrett is getting excited about the new house and his "secret step". The bathroom has a pull out step for him. :) he's such a observant little guy. We always pass the cemetery in Hyde park when driving out to the lot.... And he always says we're close to grandma Jan's house! (Who lives by a cemetery 5 hrs away) ha ha. But he can tell where we are headed by the landmarks we pass. He's an incredibly smart kiddo. He's excited for preschool!!  Which he thinks starts tomorrow (for like the past week). "I HAVE to go to my school today mom! We're gonna be late." Funny boy. 

Jordan and I are still doing house stuff and we finally got a lot! It's in smithfield ut. So we are trying to get the process going as fast as we can. There have already been many decisions and blessings in the process. We truly believe this is where we are meant to be at this time. 
However, can't believe how much stuff we have. New tradition in the new place... Clean out once a year! Also Jordan has given the compound a new name- El gallo. For those of you who don't know Spanish.... That means rooster. (The lot has a rooster tale shape to it.) Jordan is so funny/silly sometimes! I love it!  
So onward with life and we'll keep posting as we find stuff out!! Thanks for all the kind words and well wishes!! 

Garret and Audrey playing in the new cupboards- the time out room. Too much fun!
Garrett's "secret step"
Fun at the park with grandma Linda and cousins!
Grasshopper/ boxelder bug hunting = death by water 

His superhero powers are contained in my  bottle funnel. He has an imagination.