I know you all are wondering what the DR has said.. We are still wondering ourselves. No one has returned our phone calls and I'm not expecting much in the near future from this particular DR.
We have been able to see the report online... And all we could decipher was that her seizures are lasting longer in her brain than what we see physically. So not super good news but we did want to confirm that with the DR. Oh well...
And so the wait continues.... However we have officially decided and are working on heading out to Ohio to get a second opinion and, for a lack of a nicer way of saying it, better care/plan. So I'm on the phone a lot and trying to get records and such to the right people. We are hopeful that this is the right direction and step we need to take for Audrey and I'm excited to figure out some answers!
It has been 6 months since Audrey had her first seizure and I'm amazed not only with how things have changed an progressed, but how we have also changed and progressed. It's been rough but good lessons learned. It never turns out how you think....
We are still in the teething stage.audrey has her two bottom teeth finally and loves French fries and Popsicles. She knows what a horse, dog, cow and owl say. Her favorite is the horse, with the accompanied horse ride (usually from dad). She loves to sit in the car shopping carts. She's making car noises while turning the wheel as fast as she can. We are in trouble.... Her favorite word right now is "ah ooooh" as she drops things over the side of her high chair, crib, carseat, etc. it really is her favorite game too- when we play along.
Garrett is getting excited about the new house and his "secret step". The bathroom has a pull out step for him. :) he's such a observant little guy. We always pass the cemetery in Hyde park when driving out to the lot.... And he always says we're close to grandma Jan's house! (Who lives by a cemetery 5 hrs away) ha ha. But he can tell where we are headed by the landmarks we pass. He's an incredibly smart kiddo. He's excited for preschool!! Which he thinks starts tomorrow (for like the past week). "I HAVE to go to my school today mom! We're gonna be late." Funny boy.
Jordan and I are still doing house stuff and we finally got a lot! It's in smithfield ut. So we are trying to get the process going as fast as we can. There have already been many decisions and blessings in the process. We truly believe this is where we are meant to be at this time.
However, can't believe how much stuff we have. New tradition in the new place... Clean out once a year! Also Jordan has given the compound a new name- El gallo. For those of you who don't know Spanish.... That means rooster. (The lot has a rooster tale shape to it.) Jordan is so funny/silly sometimes! I love it!
So onward with life and we'll keep posting as we find stuff out!! Thanks for all the kind words and well wishes!!
Garret and Audrey playing in the new cupboards- the time out room. Too much fun!
Garrett's "secret step"
Fun at the park with grandma Linda and cousins!
Thanks for the update! Exciting about your home coming together for you! So sorry you aren't getting the answers here that you need for little Audrey, but hopefully soon you can get it all under control! Hugs to all, and Happy Birthday to that hubby of yours!
ReplyDelete