This last week my mom and I went to pick out granite for the counter tops. WOW! it was a girl's dream to have that many choices. Literally hundreds. and several different cuts within the same color! it was SO COOL!!! I did manage to pick one out.. we'll see if my choice is in line with the budget... ;) haha probably not.
just love these eyes |
So I did finally hear back from the doctor. Her EEG showed seizure activity starting all over her brain... which isn't what I was hoping to hear... basically because we don't have the option of just going in and cutting out the problem part and have a shot at getting rid of the seizures in one swoop. So we will be on medication for a long time, hopefully finding the right combo/ones to help decrease her activity and best case scenario, stopping them altogether. So we made medication changes which I think have helped a little bit, (we are currently on day 13) but I'm still holding out for the next couple of days. Plus she's sick again.. so that cuts down our odds of pushing past day 14. :(
He did mention a specific genetic disorder he was leaning towards... but for the sake of not worrying and trying not to jump to conclusions.. I'm not saying what it is. :) sorry. There is a specific gene test that says if you're positive or not... so we are going to see if the DR in Ohio feels the same, and take that test before we tell everyone... (it's not a good one to have.) so until then.... and more info from Ohio DR...... surgery is out and we are still waiting for an answer as to what she has.
Speaking of going to Ohio.. no date has been set yet... we're still waiting on getting medical records. FYI for anyone who is wanting to get theirs... just go directly to the records department and wait until you have everything you need. :) otherwise it will be 14-?? days for them to print and mail them to you. just some friendly advice.
On some more happy news...
Audrey has been progressing more! YAY!
she can now say: grandma, grandpa, book, and make car noises.
bend over and pick things up and then stand again.
starting to walk along the couch, and LOVES to hold onto you're fingers and walk.
Does this little bounce/hop on her bum. too funny. she almost bounces too much and falls forward onto her face.
and she LOVES the water. we went swimming last week and she splashed so much that we thought she was drowning... all the time having a smile on her face.
LOVES to read books. she will let you read every book 5 times and then more.
She will now follow simple commands- come here , go get a book, and no- but not very good.. she's stubborn.
She also loves to tease people. a little boy at church was handing her the ball and would then pull it away at the last second. She picked up on that, and when she finally received the ball, proceeded to do it back to the little boy. ha ha it was too funny!
Superman cape! |
I told him in the car the other day that Audrey might have a seizure and that he would have to help grandma out if she did... This was the conversation....
G-"Did you bring the diaper bag?" Me- "yes"
G- " Did you get a burp rag?" Me- "yes"
G- "Did you pack a sucker? (bulb syringe) Me- "Yes"
G- " Did you pack those one things that you do? (emergency meds) Me-"Yes"
G- "Those ones that you stick up her bum?" Me trying not to laugh out loud- " Yes garrett" hahahaha it was too funny! But what a responsible 3 year old. I still can't believe he knows the routine and of course feels like he could take care of Audrey if she really did have a seizure. I am truly amazed. love my little guy!
ahhh sibling rivalry... they do try to share. |
an evening bike ride. |
g man learned that if you stick something in the canal... you can follow it and fish it out. just a childhood staple, right? |
Love the picture of Audrey's eyes, she does have amazingly beautiful clear eyes framed in by those lushes long lashes! Garrett looks so proud of his cape, and I love that he is wearing a helmet throwing sticks in the canal! We missed you guys at Ashlyn's party! Sorry Audrey was sick! Hope she is feeling better by now!
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