**4/19
So we made it through to another week. Whew.
Audrey did good for the rest of the week. We found out wed night she had an ear infection, which contributed to sleepless nights and days, which caused stress for her body, which all helped the breakthrough in seizures. She's on antibiotics, and seems to be getting over the sickness that her and Garrett both came down with.
Now that we are over that hurdle... We can learn from it and do better next time and adjust our 'family protocols'... As I like to call them :)
We are now going to quarantine ourselves for the next couple of months to see if we can keep the frequency of the seizures down. It seems as though the seizures increase when Audrey does get sick. Also if Garrett gets sick, more than likely Audrey will follow in a couple days, like this week.
** 4/28
Had another seizure last Monday night. Currently we're down a week with one to go. The ear infection that she developed from 2 weeks ago never went away with antibiotics so... We are on round 3 and we are exploring putting tubes in her ears. She's had 3 ear infections in 6 weeks.. And the dr said that they like to aim for 4 in 6 months before they recommend tubes. He assured me that he would strongly recommend Audrey for them because ether are also a trigger for her seizures. We are still trying to stay away from sickness so... it would be helpful if you know you are sick and plan on hanging around us to let us know... We can then make an informed decision to stay home or join the party.
As a parent it is hard to deny your kids (and ourselves) fun outings with friends and family, but until we can get a handle on things, this is the only thing we can think of to do.
Recently I have talked to other moms who have gone through similar experiences one of them hit it right on the head.... " this is a solitary journey". We have been so blessed to have friends and family by our side but there is still this feeling as parents that no one really gets what you're going through unless you've done it yourself. Isn't that how all trials and life experiences are. It's still such a comfort that we have the gospel in our lives and to know that Christ himself had a "solitary journey" and he knows exactly how we feel. What a sense of peace that brings to me. However still being human , with many faults... Some days that solitary feeling is more overwhelming.
On a happier and more exciting note...
CONGRATULATIONS TO JORDAN!!!
He is officially done with getting his MBA!!! Well done Jordan!! I am so proud of you and all your amazing abilities to complete school while working full time and deal with us crazy people back at home in any spare time you had left! We love you and so proud of you!!! (Also to be done :) )
Just a little celebrating after...
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