The results... inconclusive at this point

So I know you all have been waiting to hear about our experience from this last week. The short and sweet version is... they think they are generalized seizures but 'they' (Fellowship lady/PA lady) don't really know. Our Neurologist is out of town in Peru for 2 weeks so we won't know the real verdict until he gets back and either calls us or schedules us for another appt to tell us the real findings. Sucks... but that's where we're at.

the 'jail'

To get more in depth as to what happened.... Here's the full version.
Sunday- came back from an amazing and fun trip to Island Park with Jordan's family! we had a blast!! (another post to come later) On our way home we stopped at my Grandma's to say Hello, and Audrey decided to have a seizure there. (I'm sure they wished we would have stayed away... sorry about the scare Grandma!) She was fine and we later went to another family event that evening where she was happy and loved seeing everyone.







Monday - We headed down and got Audrey checked in to the hospital, all hooked up with the EEG leads, and waited for something to happen the rest of the day. She was a happy, fun little girl and of course all the nurses loved her! She was very friendly and told everyone who came in, "Hello" and "bye bye" when they left. A model patient of course.

Tuesday- More hanging out and trying to find ways of keeping Audrey entertained... She ended up staying in her 'jail' of a crib for 98% of the time we were there. She learned how to pull herself to a standing position with the rails on the crib, and had a blast playing peek-a-boo with the metal square where the handles were. (just big enough to hide her face). We had a visit from 'Auntie Julie' who brought some much needed delicious food to me! as well as some company ;) Thank you Julie!!! Aunt Mardee stopped by with some 'goods' momma style! also greatly needed ;) (dr pepper all the way!)  Jordan stayed home to continue the 'lot' search and to also get something done at home. Thanks Honey!!

the cords to the left wrapped in green and red are from the EEG leads.

Wednesday- Pretty much the same thing... entertain Audrey, wait for some seizures. We did a lot of sleep deprivation today... trying to bring one on so we could go home. I was missing my own bed at this point. The day went great... the night was a little different.
She woke up at about 11:45pm and puked everywhere. She managed to contract the flu somehow and so it was enough, in pair with all the sleep deprivation we did that day to bring upon the seizures.

Happy girl on Wednesday before the showdown.

Thursday- She had about 9 seizures total this day (2:30 AM- 8:30 PM) that I could physically count. about 1 every 2-4 hrs. She also had many different kinds of seizures-
-Grand Mal: also known as tonic/clonic (these have been increasing in frequency)
-Absence: essencially staring spells that can last up to 20 sec. (been seeing more of these)
-Simple Partial with Secondary Generalized: Starts in one spot and then spreads to the rest of her body. (been seeing less of these)

She mainly slept this day.. and had seizures. just an idea... wake up, have seizure, go back to sleep and repeat cycle.. until 8:30 pm when we were finally able to get her some rescue meds to stop them. Grateful for the nurse shift change.... enough said. She finally was able to sleep in comfort and grateful for Jordan who took over for the night. I was exhausted and trying to keep my cool. Aunt Cyndee was a lifesaver by bringing me lunch .... which was divine... so that I wouldn't have to leave Audrey's bedside... which I didn't dare do with the staff on hand.


   Friday- She slept for most of the early morning, and then woke up about 9 am. Her poor little body had been through the ringer. I'm sure she felt awful and the side effects of the rescue meds were still very apparent. She hardly had any muscle strength, and was an onry bear. (can't blame her) She still wanted to be as active as the previous days but just didn't have any strength or coordination left. We finally got checked out by 1:30 p and were excited to be on our way home. (Finally! conclusion above)

Drunken baby today. such a sad little girl :( this is
as close to a smile that she got to for 2 days.

She slept a lot over the next couple of days and still had muscle weakness until Sunday Morning. She finally could sit up, crawl, and move without tipping over every time. She still has some flu effects...poor baby... which the Pediatrician said could last about 2 weeks-month. The flu is hard on babies. Of course Garrett contracted it.. Yea for us. I've done literally mountains of laundry and Clorox my little heart out. I feel so bad for these two kiddos... it's so much harder on them. I'm hoping Jordan and I don't get it next. I think we get a break for a little bit.... all those in favor say "I".  :)

So we are waiting for the final verdict which will be a couple weeks. However, in the meantime... we are currently looking for a second opinion and researching some other doctors. We'll keep you posted when we know more! Thanks so much for all the support, prayers, and kind words!!! You're support really means the world to us! How VERY GRATEFUL we are for our wonderful family and friends.


Also I have to give a BIG THANK YOU!! To our great moms who watched Garrett for us those long 5 days. It was a huge relief to know that he was in good hands! And of course he had the time of his life! He's been asking when he can sleep and his grandma's houses again..... but then changes his mind and says he wants to stay home with us. ;) my sweet boy. love him and missed him a lot that week, and so did Audrey!

**side note- Audrey now has her first tooth! Ahhh the teething stage.